Last week, the lovely Erica Ehm passed along an email to me. It was from a young single mom named Nicola. She has a little boy who, like Tanner, has Duchenne’s Muscular Dystrophy. This is what she said:
I am 21 years old and I have a 4 year old son who’s been diagnosed with Duchenne Muscular Dystrophy. I recently found out that he is in need of a foot brace and I hadn’t placed my name on any funding list to have the braces funded by the government. I am a single-mother and York University student and I decided that I wanted to throw a fundraiser to help raise the money for his foot brace. I am also in the process of starting an organisation with my partner Sean to donate money towards kids with Duchenne’s to help find other resources other than steroids to aid these children with the progression of the disability. We are inviting you out to this fundraiser as this is our first fundraising event for this cause. The event will be taking place Nov. 12th 2010 from 6-8 at 1900 sheppard ave west. Lower level. The building where I reside is a building for strickly young mother and their children. This event is an interactive informational session to give people an awareness as to what this disability is and how we as a community can help support the families who have children with this disability. There will be a raffle for different items as well as food and beverages for sale. To make the night that much more enjoyable we are having performers such as singers, and poetry and perhaps even a piano performance by me-as I am a piano major. (emphasis mine.)
I cried. And then I got in touch with Nicola directly. I told her that I wanted to do whatever I could to help her get the word out about her event, and to raise money for that leg brace, and to just, you know, support her somehow.
She needs $700. So little, and yet it means so much. I’m going to throw in, but I’m also putting up a widget, one specially for her and her son, in case, you know, anyone else wants to help out.
(I bumped up the amount a little. She’s a single mom, and a student. She needs it.)
I’m going to go to her event next week, in a tutu. I’m hoping that I can get a whole bunch of you to come, too, so that she can see how much love and support is out there. So that she can see that she isn’t alone. So that I – that we – can fulfill another of Tanner’s wishes, the one about seeing other boys like him get some wishes fulfilled. So that we make the tutus earn their keep.
Let me know if you can come. Maybe we can co-ordinate transportation from subways and the like (it’s not exactly central, but then again, Central Park wasn’t exactly central either, if you’re Canadian.) I’m going to post more of their story at HBM, when I can contain my tears a little better, but in the meantime, will you come? Will you help?
Nov. 12th 2010 from 6-8 at 1900 sheppard ave west. Lower level. I’ll bring extra tutus.